Mitocamb Team Newsletters
Mitochondrial Disease Information
If you would like to find out more about mitochondria and mitochondrial disease, we would recommend the following resources:
Clinical Mitochondrial Medicine Book
Helping to become mito aware
Mitochondrial disease patient organisations
Lily Foundation
The Lily Foundation is a leading UK charity that aims to improve the lives of people affected by mitochondrial disease.
To find out more information, including other current research, please click here to be directed to their webpage.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders, and provides support to affected patients and their families.
To find out more information, please click here to be directed to their webpage.
NHS rare Mitochondrial Disorders Service
The NHS rare Mitochondrial Disorders Service (RMD service) is a highly specialised service for rare mitochondrial disorders.
To find out more information, please click here to be directed to their webpage.
Optic neuropathy patient organisations
UK LHON Society
The UK LHON Society was established to create a home for those affected by and with an interest in LHON. The charity supports those affected by LHON in the UK, raising awareness of the condition and helping researchers find effective treatments.
To find out more information, please click here to be directed to their webpage.
Cure ADOA Foundation
The Cure ADOA Foundation was founded for and by ADOA patients, to be a platform to promote scientic research into ADOA and to raise the profile of this common cause of inherited blindness.
To find out more information, please click here to be directed to their webpage.
Autosomal Dominant Optic Atrophy (ADOA) Association
Autosomal Dominant Optic Atrophy (ADOA) Association is a charity dedicated to raising awareness about ADOA and helping medical research to find a cure.
To find out more information, please click here to be directed to their webpage.
Wolfram Syndrome UK
Wolfram Syndrome UK is a national charity set up to fund research into Wolfram syndrome and to provide support for those affected by the condition and their families.
To find out more information, please click here to be directed to their webpage..
Other inherited neurodegenerative disorders’ patient organisations
Alzheimer’s Society
The Alzheimer’s Society is a leading UK charity which campaigns for change, funds research to find a cure, and supports people living with dementia today.
To find out more information, please click here to be directed to their webpage.
Ataxia UK
Ataxia UK is the leading national charity in the UK for people affected by any type of ataxia. They fund research into finding treatments and cures, and offer advice, information and support to people affected by the condition.
To find out more information, please click here to be directed to their webpage.
Action for A-T
Action for A-T is a charity dedicated to speeding up the process of identifying a cure or treatments for Ataxia Telangiectasia (A-T).
To find out more information, please click here to be directed to their webpage.
Dystonia UK
Dystonia UK is the only UK national charity dedicated to helping people living with dystonia.
To find out more information, please click here to be directed to their webpage.
Hereditary Neuropathy Foundation
Hereditary Neuropathy Foundation is a non-profit organisation dedicated to increasing awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies.
To find out more information, please click here to be directed to their webpage.
Muscular dystrophy UK
Muscular dystrophy UK is a charity fighting muscle-wasting diseases. They support high quality research to find effective treatments and cures for all muscle-wasting conditions. They also provide a range of services and resources to help people live as independently as possible.
To find out more information, please click here to be directed to their webpage.
NBIA Suisse
The Neurodegeneration with Brain Iron Accumulation (NBIA) Suisse are a non-profit organisation that support research focused on finding a cure for patients with neurodegeneration with brain iron accumulation (NBIA).
To find out more information, please click here to be directed to their webpage.
Neurodegeneration with Brain Iron Accumulation (NBIA) disorders association
The Neurodegeneration with Brain Iron Accumulation (NBIA) disorder association is an association focused on finding a cure for NBIA. They provide support for families, aim to educate the public and work to accelerate research with collaborators from around the world.
To find out more information, please click here to be directed to their webpage.
Funders
Thank you to all our funders, without whom our research would not be possible!
